History

In Italy, as in other southern European countries, the cancer registries were not founded as national initiatives or following specific plans and criteria. More frequently they were the initiatives of individual clinicians, pathologists, epidemiologists and doctors in the public health system. The voluntary nature of such initiatives meant that the registries remained small to medium in size, and only recently have public bodies (CCM, the regions etc.) promoted programmes to extend registration to the entire territory of Italy. The increase in coverage over the years can be viewed at ‘a visual history of the cancer registries’.
The geographical distribution of Italian registries, too, is a reflection of the spontaneity that has characterised the institutions, for compared with central and northern Italy, where registration activities abound, the south, where understanding of the phenomenon of neoplasia is based on little real knowledge, has very few cancer registries.

The registries as they were founded (with founding date):

  • Varese, the first registry in Italy (1976)
  • Parma, closely following Varese (1976)

Followed in the 80's by:

  • Ragusa (1980)
  • Latina (1983)
  • Florence (1984)
  • Genoa (1984)
  • Turin (1985)
  • Modena (1988)
  • Ferrara (1989)
  • Romagna (1986)
  • Veneto (1989)

Other were started in the 90's:

  • Macerata (1990)
  • Sassari (1992)
  • Umbria (1994)
  • Bolzano (1995)
  • Naples (1995)
  • Biella (1996)
  • Trento (1997)
  • Friuli Venezia Giulia (1998)

They were joined by the following from 2000:

  • Reggio-Emilia (2001)
  • Salerno (2002)
  • Milan (2002)
  • Sondrio (2000)
  • Trapani (2008)
  • Siracusa (2008)
  • Brescia (2009)
  • Mantova (2010)
  • Catanzaro (2010)
  • Nuoro (2010)
  • Como (2012)
  • Catania-Messina (2012)

Five specialist registries joined them:

  • The Registry of Children’s Cancer of Piedmont (1967)
  • The Registry of Colo-rectal Cancer of Modena (1984)
  • The Registry of Mesothelioma of Liguria (1994)
  • The Registry of Children’s Cancer of the Marche (1996)
  • The Registry of Breast Cancer of Palermo (1999)

The accreditation is a task of AIRTUM.

Updated: march 2013